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*This event is for everyone


Join us for our annual Sturge-Weber Syndrome Virtual Family Symposium on Saturday, May 25. The symposium’s presentations will help those living with Sturge-Weber syndrome and their family members learn more about—and manage—their condition. We will bring together patients and families from around the United States to learn from one another and hear from some of the world’s top doctors and scientists specializing in this syndrome.


We have moved this conference from September to May to coincide with the Sturge-Weber Foundation Month of Awareness and the Vascular Birthmarks Foundation’s International Month of Awareness for Vascular Birthmarks.


Tentative Symposium Agenda

(Each presentation will be followed by a Q-and-A session.)


Introduction and Welcome

Presented by Dr. Bradley L. Schlaggar, president and CEO of Kennedy Krieger Institute


Presymptomatic Treatment for Infants With SWS: History, Study Results and Next Steps

Presented by Dr. Anne Comi, director of the Hunter Nelson Sturge-Weber Syndrome Center at Kennedy Krieger Institute


EEG and SWS: How Is EEG Used and What Are Its Clinical Applications?

Presented by Dr. Siddharth Gupta of Kennedy Krieger Institute


Neurological Complications of SWS and Cognitive Impacts

Presented by Dr. T. Andrew Zabel, vice president of clinical research and quality improvement at Kennedy Krieger Institute


Neurological Complications of SWS and Motor Impacts

Presented by Dr. Stacy Suskauer, vice president of pediatric rehabilitation, co-director of the Center for Brain Injury Recovery and director of the Brain Injury Clinical Research Center at Kennedy Krieger Institute


Conclusion, Resources and Next Steps

Presented by Dr. Comi


There is no cost to attend this conference. Click here to register