*This event is for everyone

Join us for our annual Sturge-Weber Syndrome Virtual Family Conference on Saturday, May 17. The symposium’s presentations will help those living with Sturge-Weber syndrome and their family members learn more about—and manage—their condition. This year's conference will focus on managing the disorder in adults. We will bring together individuals from around the United States to learn from one another and hear from some of the world’s top doctors and scientists specializing in this syndrome. 

Tentative Symposium Agenda

Introduction and Welcome
Presented by Dr. Bradley L. Schlaggar, president and CEO of Kennedy Krieger Institute

Neurological Issues and Adults with SWS
Presented by Dr. Anne Comi, director of the Hunter Nelson Sturge-Weber Syndrome Center at Kennedy Krieger Institute

Ophthalmologic Issues in Adults with SWS
Presented by Dr. Courtney Kraus, associate professor of Ophthalmology,  Wilmer Eye Institute, Johns Hopkins University School of Medicine 

Genetic Issues and Adults with SWS
Presented by Dr. Nara Lygia de Macena Sobreira, associate professor of Genetic Medicine, Johns Hopkins University School of Medicine  

Medical Rehabilitation and Adults with SWS
Presented by Dr. Stacy Suskauer, vice president of pediatric rehabilitation, co-director of the Center for Brain Injury Recovery and director of the Brain Injury Clinical Research Center at Kennedy Krieger Institute

Function and Quality of Life in adults with SWS 
Presented by T. Andrew Zabel, vice president of clinical research and quality improvement at Kennedy Krieger Institute

Neuro-Endocrine issues and Adults with SWS 
Presented by  Dr. Anne Comi, Professor of Neurology and Pediatrics

Adults with SWS Supporting SWS Care and Research
Presented by Ida heck, President of Celebrate Hope Foundation

Conclusion, Resources and Next Steps
Presented by Dr. Anne Comi
 


There is no cost to attend this conference.
Once registered, you will receive a link to access the conference.

There is no cost to attend this conference. Register here:
https://kennedykrieger.zoom.us/webinar/register/WN_j6CaRkNdR2SBc8U4mDgmsQ