*This event is for everyone

This year's conference will focus on infancy and early treatment and diagnosis. It will bring together individuals from around the U.S. to learn from one another and hear from some of the world’s top doctors and scientists specializing in this syndrome.
 

Tentative Symposium Agenda and Topics
 

• Additional speakers and panelists to be announced.
   

• Introduction and Welcome 
  • Presented by Dr. Bradley L. Schlaggar, President and CEO, Kennedy Krieger Institute 
• Presymptomatic Treatment for Infants With SWS
  • Presented by Dr. Anne Comi, Director, Hunter Nelson Sturge-Weber Syndrome Center, Kennedy Krieger Institute, and Professor of Neurology and Pediatrics, Johns Hopkins University School of Medicine, and TBD
• Improvements in the Early Diagnosis of SWS Brain involvement
  • Presented by Dr. Anne Comi
• New Treatment for Acute Neurological Crises in SWS
  • Presented by Dr. Fabiola Morales-Vias, Fellow, Neurology and Developmental Medicine, Kennedy Krieger Institute, and Brenna Keam, Research Assistant, Sturge-Weber Syndrome Clinical Research Center, Kennedy Krieger Institute 
• Latest Translational Laboratory Advances
  • Presented by Ashleigh Manney, Research Assistant, Sturge-Weber Syndrome Translational Research Laboratory Group, Kennedy Krieger Institute 
• Prospects and Progress Toward Future Novel Treatments
  • Presented by Dr. Anne Comi
• Supporting SWS Research on the Cusp of Meaningful Clinical Change
  • Presented by Ida Heck, President, Celebrate Hope Foundation; Dr. Anne Comi; and TBD 
• Conclusion, Resources and Next Steps
  • Presented by Dr. Anne Comi
    
    
     

There is no cost to attend this conference, but registration is required. Once you have registered, you will receive a link to access the conference. If you have any questions or accessibility requests for this webinar, please email ConferenceReservations@KennedyKrieger.org