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VERSION:2.0
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CALSCALE:GREGORIAN
X-WR-CALNAME:2026 Annual Virtual Sturge-Weber Family Webinar
X-WR-TIMEZONE:Eastern Time (US & Canada)
BEGIN:VEVENT
DTSTAMP:20260518T212133Z
UID:tag:localist.com\,2008:EventInstance_52496740276049
DTSTART:20260516T140000Z
DTEND:20260516T180000Z
DESCRIPTION:*This event is for everyone\n\n\n\nThis year's conference will 
 focus on infancy and early treatment and diagnosis. It will bring together
  individuals from around the U.S. to learn from one another and hear from 
 some of the world’s top doctors and scientists specializing in this synd
 rome.\n \n\n\n\nTentative Symposium Agenda and Topics\n \n\nAdditional spe
 akers and panelists to be announced.\n \n\nIntroduction and Welcome  Prese
 nted by Dr. Bradley L. Schlaggar\, President and CEO\, Kennedy Krieger Ins
 titute Presymptomatic Treatment for Infants With SWS Presented by Dr. Anne
  Comi\, Director\, Hunter Nelson Sturge-Weber Syndrome Center\, Kennedy Kr
 ieger Institute\, and Professor of Neurology and Pediatrics\, Johns Hopkin
 s University School of Medicine\, and TBDImprovements in the Early Diagnos
 is of SWS Brain involvement Presented by Dr. Anne ComiNew Treatment for Ac
 ute Neurological Crises in SWS Presented by Dr. Fabiola Morales-Vias\, Fel
 low\, Neurology and Developmental Medicine\, Kennedy Krieger Institute\, a
 nd Brenna Keam\, Research Assistant\, Sturge-Weber Syndrome Clinical Resea
 rch Center\, Kennedy Krieger Institute Latest Translational Laboratory Adv
 ances Presented by Ashleigh Manney\, Research Assistant\, Sturge-Weber Syn
 drome Translational Research Laboratory Group\, Kennedy Krieger Institute 
 Prospects and Progress Toward Future Novel Treatments Presented by Dr. Ann
 e ComiSupporting SWS Research on the Cusp of Meaningful Clinical Change Pr
 esented by Ida Heck\, President\, Celebrate Hope Foundation\; Dr. Anne Com
 i\; and TBD Conclusion\, Resources and Next Steps Presented by Dr. Anne Co
 mi\n\n\n  \n\nThere is no cost to attend this conference\, but registratio
 n is required. Once you have registered\, you will receive a link to acces
 s the conference. If you have any questions or accessibility requests for 
 this webinar\, please email ConferenceReservations@KennedyKrieger.org
LOCATION:
SUMMARY:2026 Annual Virtual Sturge-Weber Family Webinar
URL;VALUE=URI:https://eventscalendar.kennedykrieger.org/event/copy-of-2025-
 annual-virtual-sturge-weber-family-webinar
CATEGORIES:Meetings
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