Skip to main content


Meet other families affected by SYNGAP1 to discuss the challenges of living with affected SYNGAP1 individuals, manage new strategies and gain valuable information and support about SYNGAP1.


  • Dr. Connie Smith-Hicks - SYNGAP1 Study Clinic Overview: Updates/Overview/Discussion/Q&A
  • Richard Huganir, PhD - SYNGAP1 Science Update
  • Dr. Shilpa Kadam ~ Sleep/EEG Recording Study Updates
  • Jordyn Stuart, PhD; Greenwich Biosciences - Cannabinoid Science, CBD and Epilepsy Discussion
  • Alyssa Blesson, MGC CGC Genetics 101
  • Griffin Rooker, PhD- Behaviors In ID and Autism
  • TBA, Drug Development Process
  • Monica Weldon - Natural History Study Registration 
  • Patient Registry Overview and Online Participation 

Saturday, November 9, 2019 at 8:00am to 5:00pm

Arnold J. Capute, MD, MPH, Conference Center
The Harry and Jeanette Weinberg Building at 1741 Ashland Avenue, Baltimore, MD 21205

Event Type

Meetings & Conferences

Target Audience

Patients & Their Parents, All Events, Events for Everyone




Google Calendar iCal Outlook

Recent Activity